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My name is Tanya Betz and I am 29 years old. I have three children Tabitha (8), and Jordan (6) and, Trinity (2 1/2) Months. The two older are average size. I thought I was finished having children after Jordan. Then about a year ago I said I would have one more baby, if the baby would stay small. I got pregnant with Trinity shortly after.
I was about 17 weeks
when I just knew there was something not right. I was so
very small, unlike my other pregnancies. I asked lots of
questions and they could not answer them. Then, I finally
got them to agree on getting me transferred to a
different hospital about 30 weeks. The new Doctor gave me
an amniocentesis the first day he saw me. That came back
14 days later as (46xx) baby girl, and negative. So, they
did non-stress tests and ultrasounds 2x weekly. They
didn't understand why she was so small. They had me
drinking 3 to 4 nutritional drinks a day. Hoping it would
help her grow. They felt that she would get more
nutrition on the outside then on the inside. So, they set
me up with an appointment for inducing me at 38 weeks.
I was already prepared for after the birth they would take her to the NICU. But, when she came out to our surprise she didn't need anything. Trinity was perfect just extremely small. She got to spend 40 minutes in our room before they took her to NICU. That evening the Doctor on call came to my room to tell me that they thought she had some type of dwarfism but was not sure which one. I was thinking in my head (what do you mean which type, how many types are there). Later, found out there are around 200 different types.
Trinity weighed 1.389
grams (3 lbs. 1 oz.) and 35.5 cm (13 1/2 inches long).
Her APGAR scores were 8 at 1 minute and 9 at 5 minutes.
As the hours turned into days and the days turned into
weeks they weren't telling us much. I truly felt like
they were looking for something wrong with her. She was
not eating like they wanted her to. So, they started tube
feeding her. I would sit and watch her; I could tell how
much she hated it. Every time she would turn bright red,
scream, and then throw up. I would say if you only let
her eat less, and more frequent she would be just fine. 3
1/2 weeks later they finally let me breast-feed her and,
she took it like a duck that found water. Thankfully, I
have had no problems with her feeding since.
Trinity has been home for a month and a half and she is doing great. She weighs 4lbs and 8ozs so she is gaining some weight. I know I have a long road ahead of me but it helps knowing there are other families that understand.
Trinity and Tanya
Update: Check out this article in the Calgary Herald about Tyler!
Tyler Frank White was born 5th June 2003 @ 15:51 in John Radcliff Silver star ward Oxford England
And the Doctors called our little boy a miracle as they said through out my pregnancy he would die.
I will try to describe as best as possible when you get bad news as a parent or parent to be you
shut off to bad news and become zombie-like so please understand if I jump to one thing to another.
Our story -
We tried for a baby for about 6 years and nothing ever happened. I just kept getting cyst after cyst
on my ovaries mostly the left - I was back in hospital again with another cyst and the doctor is
telling me I have to have another operation. So finally the Doctor said to remove my left
ovary and fallopian tube which I agreed to so I went in had the surgery. About five weeks later we
had to put our cat to sleep he was like our baby he was really sick - so anyway I thought I was having
a nervous breakdown I couldn't sleep, couldn't stop crying. We I went to the doctor I told about how down
I was feeling and that I had a bad stomach he asked if my period was late I said yes but I thought it was
down to the operation he said I will do a test but just to tell you if you are pregnant, it's probably
ectopic so don't get your hopes up. Turns out I was 6 weeks pregnant - which was a scare right from the beginning
because the doctors are panicking because I was 2 weeks pregnant when I had the surgery.
So I was rushed up to the hospital in an ambulance, had a scan, and they said come back in 2 weeks, there is
no heart beat yet. So I was about 6 weeks at that time but all looked good as the baby was in the right place!
I went back, and everything was fine with the baby, all seems normal at 8 weeks. Next I got pre-clampsia at
3 months and had to take all my rings off. Was showing properly at 10 weeks, had to buy pregnancy clothes.
Went for my 3 months scan and they said they thought I was a couple of weeks behind what I thought I was from 1st scan.
So I had to go back again in another couple of weeks when they said they wanted to see me again and watch me closer.
I went back at sixteen weeks for a scan and they asked me to do a
Amnio test and they wanted the fish test done
because baby had stopped growing again. I just shut down and said no because I was scared I would lose my little boy
from the test.
Went back at 19 weeks for another scan and they were whispering in the corner right then we knew everything was not fine .
They convinced me to go to Oxford John Radcliff's center for High Risk mums and babies (Silver Star). I had the test done,
had the main results back in 24 hrs. which showed Tyler did not have down syndrome. And the rest of the results
arrived 4 weeks later.
But they said on the Thursday before I had the Amnio test -come back Tuesday if he hasn't grown then we are going to
induce you. I was 22 weeks then, and thought, "But he will not survive!!!" I said "But it doesn't feel wrong I
can feel him move, everything seems fine." The nurse said "Yeah, your in denial"
I sat there for a while they put us in a room as I almost collapsed. And it was at that point when I turned to my husband
and said he is a fighter if he wants to be here he will fight and if he decides he doesn't want to then he has made
that decision himself. And Tyler did just that... he decided he wanted to meet his mummy & daddy. Tyler did not grow that
week and we told the doctors it was up to Tyler he was making the
decisions now not us!
I was being scanned once or twice a week for a couple of weeks when my
key tones and protein were going up and my weight too, so I lived in hospital under the professors care for over three weeks - he was nice but never told us anything
positive, only our baby boy would die.
At 32 + 4 weeks I had a scan and they decided pretty much on the spot they had to do a emergency C-section - as another
problem I had was the fluid around Tyler was going down he was in about 1 -2 cms of fluid. also the cord was around
his neck and his arms where caught up somewhere around his head also. So about an hour later I was on the table when the
doctor comes over and says "he will not breathe on his own, open his eyes. and he will get a infection and die." So as you
can imagine we where really scared!!
Baby Tyler was born June 5th 2003 15:51PM Weighing 580grams - 1LBS 4 1/2 Oz. I was 32+4 weeks along when Tyler was born.
He was breathing on his own - they wheeled him over to me and when he heard my voice he opened his eyes and a little cry
came out. There were doctors in there crying as they thought Tyler would not survive he really
surprised everyone.
He stayed in hospital until he was 2lbs 12oz just below 3lbs and it was decided they where providing a expensive
babysitting service. He was only in hospital for 8 weeks that just sounds unreal still.
Please visit Tyler's website:
http://ourlittlemiracle.info
