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| Potentials Foundation | ||
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The Potentials Foundation is a wonderful organization that has been put together by Elizabeth Hale, the mother of a young child with Primordial Dwarfism. The Foundation's purpose is to "enrich the lives of individuals with Primordial Dwarfism by facilitating opportunities for families to meet, providing for any adaptive or medical needs, and furthering research efforts." If you or a family member are affected by Primordial Dwarfism, you can sign up for the "Families Only" section of the website, where you can ask questions or swap ideas with others who have had similar circumstances. The foundation also lends financial support to families affected by PD in several ways, from helping with travel costs for medical visits, to helping with adaptive or medical equipment. In the future, the foundation may also act as a clearinghouse for information on primordial dwarfism for both the medical research community and affected families. We highly recommend that all families affected by Primordial Dwarfism register with the foundation. Potentials
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| Orthodontics/Prosthodontics | ||
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One of the many issues facing children with Primordial Dwarfism is the loss of, or absence of adult teeth. In the past few years, Dr. Stephen Riedy of Livonia, Michigan has performed orthodontic surgery for two patients with MOPD II, and using a combination of implants and dentures, has been able to significantly improve both the appearance and function of his patients teeth. Dr. Riedy can be contacted at his practice at: Stephen
J. Riedy, D.D.S., M.S., F.A.C.P. |
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| Hotel/Motel | ||
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The Microtel Inn and Hawthorn Suites hotel chains have become the first to include access to a ‘Short Stature Accessibility Kit’ at all of their locations. The kits contain such helpful items as a custom stepstool, ergonomic reach grabber, door security latch adapter, and specially designed closet rod adapter. You can find out more about the kits at the following websites: http://www.microtelinn.com/ada/accessibility-kits.asp http://www.hawthorn.com/ada/accessibility-kits.asp For reservation and location information for Hawthorn Suites and Microtel, you can go to:
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| Painted Turtle Camp - Little People Session | ||
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The following letter was sent to the website this month, and highlights a wonderful opportunity for families to share in a camping experience specially designed for children with skeletal dysplasias. Please feel free to contact Margaret Davis at the e-mail address listed below for more information From: "Margaret
Davis" <margaretd@thepaintedturtle.org>
Dear Jackie,
I believe it was your daughter Hannah that was featured on a program I saw a few months ago about children with Primordial Dwarfism. I wanted to let you know that in 2007 we will again have a Skeletal Dysplasia Summer Camp Session. Our first experience was in 2006, when we had 75 children with dwarfism, including Primordial Dwarfism, for five wonderful days. The campers were amazing, and children and staff alike had a fantastic time.
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